Today we went to primary children's hospital! We are so happy and pleased with our end result!
When we first walked in I was so happy to be there but as we walked down the halls I couldn't help but get emotional. I first thought of my own brother Devan and the times he had been in and out of that hospital, with his heart condition. I remember walking down those halls with out a care in the world! Even tho my brother was going through living with a hole in his heart and shortness of breath, tiredness and lot of social issues because he could't keep up with other kids. I thought about my mom, and how scared she had to of been that her newborn- 3 year old had to go into surgery after surgery not knowing when his heart would be fixed. I thought she must have had lots of love from her mom and dad! And how grateful I was for my grandparents for being there for my mom then and how supportive they have been for me now.Then I thought about how supportive people we do t even know have been to us.
I kept fighting back the tears and tried to hide my emotions while we watched the fish disappear on the elevator. We walked down to the orthopedic center and lots of places seed familiar from when I was there with my brother. Like the patio full of tables that over looks the city!
There were lots of people waiting to see the doctor. Lots of kids in casts. We could hear saws in the back cutting off casts and nurses shouting out names of kids who were nervous and kids who were so happy to be getting off that nasty cast. Finally, someone yelled."Molly?"
And I felt like I had been slapped in the face. "We just need to take her x rays" so Molly and I went to the x ray room. I layed her on the table while the nurse taped her short cinnamon little arm to some plastic tray. Molly was a champ!!!!! She did not make a peep, she was almost proud of her little arm she waves around. It sometimes moves faster than her other arm and it kills me!
So they asked me to step around the other side of the door so they could take pics, once they were taken I looked at the screen and saw her two shorter bones, they were so adorable!!!! So small! We went back into the waiting room and waited to hear them say Molly's name again. They FINALLY DID! And we wet back to see Dr. Hutchinson! He was wonderful, he interacted with my girls and then got to business!
He told us that Amniotic Band Syndrome was NOT what Molly has. That she had congenital...(i forget the words). Pretty much a birth defect that presents her arm from growing. Also that sometimes with this disease they will have a muscle that doesn't develop that connects your arm to your shoulder causing a deformed breast, but.... Phenomenally, her muscle is totally fine!!
He told us they used to recommend a prosthetic before they started crawling but they don't anymore because their brains at that point are already programmed to the shorter arm and the develop faster without the prosthetic!
No surgery, no prosthetic (unless she wants one down the road. They used to recommend a prosthetic before they started crawling but they don't anymore because their brains at that point are already programmed to the shorter arm and they develop faster without the prosthetic! She will still crawl she will still put her clothes on she will be a normal kid!!!
He was very good and very frank! Which I loved. He told us she would probably get teased but so would the little red head sitting next to her at school! We laughed!
I'm so glad we got the news we did! We are so so blessed! And are so grateful for the prayers in Molly's behave! Thanks you everyone! We love you all!!!
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